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Little Legs Big Heart Skeletal Dysplasia Conference: Connecting Hearts, Minds & Medicine

October 23, 2025 - October 26, 2025

The Little Legs Big Heart Foundation is set to host its Second Annual Skeletal Dysplasia Conference: Connecting Hearts, Minds & Medicine, taking place October 23–26, 2025, in West Palm Beach, Florida.

Following the success of its inaugural year, which welcomed 188 attendees, the Foundation is returning with an even larger gathering—promising more impact, more connection, and more opportunities for families, medical experts, and community members to come together.

This year’s program will feature a dynamic blend of sessions focused on:

  • Advances in medical care and treatment

  • Mental health and emotional wellness strategies

  • Family and caregiver support resources

  • Updates on research, clinical trials, vosoritide, and limb lengthening innovations

  • Firsthand stories and shared lived experiences

Beyond the sessions, the conference aims to foster joy and connection through engaging activities, including:

  • Family-friendly entertainment such as face painting and magic shows

  • Wellness opportunities, from morning walk/run/rolls by the water to accessible pool workouts

  • Evening events filled with karaoke, dancing, and live music

  • A fully staffed kids’ room, ensuring caregivers can relax and connect

All meals and activities are included with registration, making this event a truly inclusive and enriching experience for attendees of all ages and diagnoses.

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